Resources
Press Release
Read the announcement launching the Surge to Save Newborns coalition and highlighting a new study on the estimated cost to end state-by-state variability in newborn screening.
Issue Brief
Use this strategic roadmap to guide your support for this small, but crucial investment to ensure every state is screening for every approved condition.
Study Report
Download the state-by-state data and the cost assumptions from the recently-released study driving this immediate, one-time funding surge.
In the News
‘Death by ZIP Code’: Newborn Screening and the Geographic Screening Lottery
A decade after her son Aidan’s death, Elisa Seeger co-founded the Surge to Save Newborns Coalition in March 2026 to eliminate state newborn screening panel disparities.
‘I lost my son.’ Group wants funds for newborn screenings to keep more Florida children alive
Elisa Seeger’s son, Aidan, was 7 when he died from a rare condition that could have been treated early if he had been screened for it as a newborn. Although Florida is one of the states that screens for adrenoleukodystrophy (ALD), the condition that Aidan died from, it lacks expert-recommended newborn screening for three other conditions for which some states screen.